Friday, May 31, 2013

A Serious Moment

If you're visiting this page because of a Facebook or Twitter announcement, welcome!  I hope you take the time to read my other posts while you're here :)

From June 1st-30th I'll be donating 50% of the profits from my Etsy shop to the Lupus foundation of America's Walk for Lupus.  Here's why:

A few years ago, my brother was diagnosed with Lupus.  I had no idea what the disease was when we found out - thanks to Aldous Huxley I thought it was something that made your lips blue (read "Brave New World" and you'll understand).  A quick web search proved me wrong, but I learned that the actual symptoms of Lupus are pretty varied and they "flare", meaning that a person with Lupus can be perfectly fine one day and suddenly be very ill the next.  Extreme fatigue is the most common symptom but the nature of the disease can cause more dangerous problems. 

Lupus is an auto-immune disease, which means that your body's natural immune defenses can't tell the difference between healthy tissue and foreign invaders.  The antibodies the immune system creates can cause fatigue, inflammation, and damage to the body's system.  The medical community currently doesn't know what causes lupus, although it seems to be a hereditary disease (it's more common in some ethnic groups, and your chances of having lupus are greater if your family has a history of other auto-immune disorders.)

That's where The Lupus Foundation of America comes in.  According to the LFA's website, this non-profit is the "only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus."  My brother is participating in their Walk to End Lupus Now event in August to raise money for Lupus research - his goal is $300 and he's about halfway to his goal right now.  I'm hoping that through my Etsy shop I can help him meet his goal!

It's estimated that 1.5 million people in America, and 5 million people worldwide have a form of lupus, and like all serious diseases it also affects the families of those afflicted.  It's pretty scary to hear your little brother is in the hospital because his pericardium (the membrane around your heart) is inflamed - that's not normal for a 25 year old.  If you make a purchase in my Etsy shop 50% of my profits will go towards his fundraising efforts.  If you want to donate directly you can do so at his Walk to End Lupus Now donation page here.  If you want to learn more about lupus the LFA website is a great tool.

One way or the other, I hope you'll consider helping this cause.  Right now lupus is a mystery disease, but with more research we can solve this mystery and make a difference in millions of lives - and one that's very important to me.

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